09 Elizabeth Carolynn: July 2013

Tuesday, July 30, 2013

Monday, July 29, 2013

Saturday, July 27, 2013

She is a very sick little girl with a condition called Citraullinemia-Classic. Her liver is not getting rid of the amino acids through her liver. He liver is failing and if the medication doesn't work she will likely need a liver transplant. She has been admitted to Texas Children's in the NICU.

http://www.newbornscreening.info/Parents/aminoaciddisorders/ASAS.html

Tia Loves me

There are multiple treatment methods. Low protein diets, are intended to minimize production of ammonia. Arginine, sodium benzoate and sodium phenylacetate help to remove ammonia from the blood. Dialysis may be used to remove ammonia from the blood when it reaches critical levels. In some cases, liver transplant has been successful.

http://en.wikipedia.org/wiki/Citrullinemia (type I)

I will most likely spend the night cramming for my medical exam in the morning. a lot of information to sort through mentally at this point. I have been in a digital black hole for three days so I have not gotten a lot of messages in or out.

Momma loves me

Jazz is sleeping at the Ronald McDonald house tonight, I am home, washing her a set of clothes for tomorrow, I will head back down before Dr Rounds. Serious loves to all!

Medical Center, Houston, Texas

Texas Children's Hospital

Monday, July 22, 2013

it was a good day

to nap

why sleeping baby pictures?
Paparazzi put down the camera when I am awake and we PLAY!

Saturday, July 20, 2013

Little Princess

Thursday, July 18, 2013

Mornin' Bess

We are still just sleeping a bunch.

Wednesday, July 17, 2013

Two Weeks Old

Such a Sweet Spirit

she had the chuckles in her sleep yesterday, I do not know what the joke was about, but it went on for minutes and it was totally hilarious to her. Extremely amusing & Boisterously merry.